Monday, July 26, 2010

Happy 20th Birthday to the Americans with Disabilties Act

What A Difference One Inch Can Make


Deborah Peters Goessling
July 26, 2010
Deborah Peters Goessling, Ed.D. is an associate professor of elementary/special education at Providence College, Rhode Island. Her wheelchair is named Red Rover.
I never realized how much one inch made a difference in my life. As an associate professor of special education, I teach students who want to become special education teachers and work with kids with disabilities. Ironically, two years ago I was diagnosed with ALS, Lou Gehrig’s disease. Now I'm the one who is really learning about disability.
In the U.S. there are more than 1 million wheelchair users. Although today we celebrate the 20th anniversary of the Americans with Disabilities Act, accessibility is still a big issue. And often it comes down to just one inch.
In the past few years, one inch has prevented me from using a friend's bathroom and from socializing on a beachfront deck because the entrance was too narrow for my wheelchair. At the post office counter, one inch lower means I can pay for my stamps. When we cannot get my beach wheelchair deep enough into the water, there is no relief from the heat. While my family is swimming and splashing, I must remain on the sidelines. With just one inch too much to the left or right, I'm unable to place my wheelchair into my van's "lock-in" system to be able to use hand controls to drive. For me, one inch can make the difference between attending a friend's 50th birthday party or staying home and mailing a gift. It limits my ability to attend family gatherings, work celebrations and bridal showers and makes me feel excluded from friends and family.
When I went to my brother's house he made a little entry ramp for me, but I couldn't visit, because his door was too narrow for my wheelchair. Most wheelchairs, like mine, measure 28 inches across and benefit from a 30-inch door. From my experiences, most residential doors are less than 30 inches wide.
Now, I am not saying that businesses and the government are in violation of ADA; I am just saying that 20 years later there are still many accessibility challenges. Many more challenges then even I, a professor of special education, could have imagined. It was a big surprise to me that a ramp doesn't always provide enough access, mandated curb cuts can be so deteriorated they cannot be used, that doors can be too narrow, thresholds too high, chairs too low and blackboards too high. We do not need more legislation, but people could be a lot smarter — and more thoughtful — when it comes to designing buildings. An inch may not seem like a lot, but to me and many others it makes a world of difference.
 

Wednesday, July 21, 2010

OH MY POOR HOT SWOLLEN FEET!!!!!!!




Summertime and the feet are hurting.
Lack of leg movement and the feet are hurting.
No circulation in my toes!  No circulation in my ankles.
Summertime and the feet are hurting.

Tried to stop wearing shoes too tight.
Tipped the wheelchair back, raised my legs to a new height.
Dan massaged my feet so they just feel right.
Summertime and the feet are hurting.

Went to my local podiatrist to see what was the score!
" Wear compression socks and then wear them some more!"
When is it ninety degrees in the shade?  Wear the tightest socks in town?
"Yes, everyday, 12 hours a day, and your swelling will go down!"

Well, my feet wear the nylon and they wear the cotton.
These socks are knee highs and very, very hot.
These socks hurt to pull them on and then to roll them down.
But in a few days,I have the least swollen feet in town!

So, summertime and the feet are hurting.
Socks are on and the feet are flirting.
Just a little swollen and now my sandals fit!
Oh summertime blues, but soon the heat will quit!

POST YOUR SUGGESTIONS FOR MY SWOLLEN FEET!!!!!!!  THANKS FOR THE HELP!

Wednesday, July 14, 2010

Celebrating July 4 on Little Deer Isle, Maine !!!!

What a delightful holiday - warm weather, cool nights, star filled skies with a visible Milky way, and Sam, Joe, and Tim with us in Maine.  Together we enjoyed  the parade, the Fish Fry on the pier, Stonington fireworks, games (including a new Monopoly card game!), an LL Bean trip, and a home-cooked lobsta' dinner.   The boys made a new path to the cove and got me to the ocean, so I could put my toes in the water!  What a treat!  The memories will last forever and the good times just rolled and rolled.  I feel blessed!