Most of the research for ALS is funded by the Muscular Dystrophy Association. They are the producers of the infamous Labor Day telethon, in which, Jerry Lewis, begs for money for his poor children who cannot walk, cannot go to Labor Day parties, cannot - cannot - cannot. I have disliked this group, MDA, for many years. I hate the PITY!!!
Now I am on the other side, I am a recipient of the MDA funded research that Mass General Hospital undertakes to study ALS. My doc says in two years or less they may be able to stop the progression of the disease - not get you walking again, but keep you living and breathing!
So Dan and I agreed to be filmed in our home, talking about the changes ALS has made in our lives, and here is the link.
Watch the link here and then you can avoid the telethon.
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Debbie (& Dan)
ReplyDeleteBoth Ted and I were fascinated by this video; by your openess about your experiences and by your dedication to make your relationship continue to work through this disease. You are both true examples of love and courage.
JCG